It’s not just about the heart: focusing on the transition journey & Life after paediatric care

  • Ms Bronwyn Norman, The Royal Children's Hopsital, Australia
  • Ms Felicity Sloman, Private Consultant, Australia
  • Despite a clear recognition in the literature of the need for early preparation for transition including a well-coordinated transfer to adult health care, young people with congenital heart disease continue to receive ad hoc preparation for their transition to adult health care worldwide. The literature has long indicated that this issue is widely recognized as an essential component of the overall health care plan of any patient with a lifelong condition, yet many health services continue to be challenged to find an effective solution. A strategy has been developed and implemented in the Cardiology Department, Royal Children’s Hospital (RCH) Melbourne to inform patients and their families about transition. Working closely with the RCH Transition coordinator for the hospital, international transition resources have been adapted for this group of young people. In addition, support and discussion opportunities are offered well in advance of the move to adult services. An experienced cardiac nurse was appointed specifically to facilitate transition processes by assisting staff to integrate transition into their current practice. This presentation will outline the issues, the new clinics, the challenges and the future plans. Following the implementation of this strategy at the RCH in Melbourne the hospital-wide Transition coordinator was given the opportunity to work within an innovative model of care newly developed in Toronto, Canada. This model, known as the LIFEspan model will be briefly outlined and its application to the transition of young people with congenital heart disease will be explored.