The Advancement of Nursing Care for Children with HLHS in Western Canada
Purpose: The Western Canadian Children’s Heart Network (WCCHN) serves the pediatric cardiac population of Canada’s four western provinces and two northern territories. The Network's goals: sharing clinical knowledge and expertise, improving care for children with heart disease, and providing support for these children and their families. Nursing’s goal is evidence-based practice -- one target group has been infants with hypoplastic left heart syndrome (HLHS) and their families. Process: Monthly Allied TeleHealth session provide a forum for collaboration, discussion and implementation regarding WCCHN nursing practice. Expertise & Leadership – With doctoral support from the Faculty of Nursing at the University of Alberta, advanced practice nurses at the Network’s two surgical sites (Edmonton’s Stollery Children's Hospital and Vancouver’s BC Children's Hospital) have developed core patient education material, teaching strategies and nursing interventions that have been adopted by the Network. Education – HLHS families receive a detailed information package. Teaching includes scale and oximeter use, infant assessment, CPR, and decision-making when their infant is ill. Consultants – TeleHealth case conferences are utilized for complex discharges, particularly those from remote locations. Network nurses are key resources for primary caregivers and families once infants are home. Research – The Network conducts annual quality reviews and family satisfaction surveys. Neurodevelopmental outcomes continue to be tracked, and parenting research continues. Conclusion: The Network nursing approach has proven successful. A conceptual model of parenting and nursing’s role in preparing and caring for HLHS families is evolving. A focussed nursing database would further enhance Network nursing research and practice.